tag:blogger.com,1999:blog-54545956039978128272023-11-16T03:44:20.993-08:00The Life and Times of CarterA place to keep up with Carter and all of the awesome things he does. Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.comBlogger35125tag:blogger.com,1999:blog-5454595603997812827.post-82794010394169456592015-11-16T08:43:00.002-08:002015-11-16T08:43:24.944-08:00Day +375 ONE YEAR UPDATE<div class="separator" style="clear: both; text-align: center;">
I'll begin with a few pics!</div>
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This is from today's visit. We are at MUSC for our one year appointment. Getting a bone marrow biopsy, checking things out there as well as in his heart; getting an echo and EKG.</div>
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Smile!</div>
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The fair! We actually were able to go this year!</div>
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Halloween. </div>
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South Carolina flooding. </div>
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Ok. It's been an ungodly amount of time since I've updated the world about my son's health. I think it's in part because the less I associate myself with anything related to his sickness, the more normal I feel. </div>
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Carter has been doing absolutely wonderful. We were admitted for his BMT October of 2014. I still remember how it felt. It was like I was just floating. I had no control of what would be the outcome. Had no idea if my child would even survive this life threatening procedure. Sure I got by on faith, but at the end of the day, that's all I had. A hope and a beg that he would pull through. It's been a scary year. One filled with triumph and victory, but also pain and struggle. I am in shock when I realize just what we've gone through over the past few years. The transplant. The nights I laid next to him in bed crying with him because we didn't understand why life was so unfair. All the ways I tried to encourage and strengthen him. The times I wanted to get away to cry but had to be the brave face. I've learned just how strong we all are. Especially when we are fighting for love. The chemo. The radiation. The meds and meds and meds. The line. All the nights we had to take a press and seal bath. I know I'm rambling, but, you can't even begin to imagine all that this boy has come through and pushed through. </div>
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He's been rehospitalized more than I can count. He's had sepsis and been in the ICU, had ecoli, and just about everything in between. He had about five times where for some reason, he would be sick with constant diarrhea and vomiting until he got so dehydrated I would have to drive to the ER and carry his limp 60lb body all over creation. Then we would be hospitalized for at least two days. Life has certainly been. . A challenge. A beautiful, gut-wrenching challenge. </div>
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Everything seems to have leveled out in our lives. He hasn't been seriously sick in a while and the times he's gotten sick (puke) we've been able to contain. He's started playing basketball and is doing great. 4th grade has been tough, but he's not missed very much time at all. We aren't afraid of public places anymore and I ran out of sanitizer in my purse. The chains have loosened a little. </div>
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I can't say how much the prayers, friends visits, messages, etc. have helped. My world has been turned upside down and I love so much the people that choose to walk with me. </div>
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Our future looks really hopeful. Carter's BMT has essentially cured the marrow failure caused by his FA. We will need to monitor his health for signs of issues with the transplant or cancer as FA can cause this. With Carter's strong will and healthy, active lifestyle, we hope we can make it through any obstacle. </div>
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Carter probably would not be alive today or have a future were it not for the donated umbilical cord blood that was given him. Please bank your baby's umbilical cord blood and consider joining the bone marrow registry. You won't just make a difference. You'll make a life. </div>
<br />Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.com6tag:blogger.com,1999:blog-5454595603997812827.post-4326075039072174882015-06-23T15:36:00.000-07:002015-06-23T15:36:11.602-07:00Day 229<div class="separator" style="clear: both; text-align: center;">
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WOW!!!</div>
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Did I read that right? 229? I can't believe it's been so long since my last update. I am ashamed.</div>
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A lot has been happening with Carter since my last update. I started writing a very long and drawn out version of what happened, but I'll try to keep it short. </div>
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I believe I updated everyone when Carter got food poisoning. </div>
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We had two other instances where Carter had to be hospitalized for about a week each due to diarrhea and vomiting. </div>
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The first time was the worst. He was very dehydrated by the time I got him in and had somehow gone into septic shock. His BP dropped, he had a fever and they admitted him to the ICU. Worst. Moment. Ever. His doctor looked at me and said, "he's really sick. This is one of the life threatening complications that can follow transplant." Let's just say I was praying in ways I didn't know I could pray. </div>
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I learned a valuable lesson that night in the ICU. It's not over until it's over. You can't live in defeat or the fear of defeat when the battle is still underway or else you kill yourself. As I prayed I felt like I needed to just support him and not give up on him. Thank God he pulled through and was doing better by the next morning. They had to give him a special epi-type medicine to boost his BP while in the ICU. To give him this med they had to start an IV in his wrist and do two stitches to hold it in place. Carter was an absolute champ that whole time. </div>
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The next time we were hospitalized, which was sadly like two days later, it was for pretty much the same thing. They did a scope and colonoscopy and found out that Carter has a lovely colon and stomach, but had irritation near the bottom of his esophagus that is consistent with reflux. The doc thinks his stomach was still very sensitive after his food poisoning and that caused him to react to bacteria he might have ingested from week old watermelon, one boiled peanut, or a pasta dish. </div>
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We had to start watching better what he ate. It's been a few weeks since then and we haven't had any episodes. Fingers crossed. The cool thing is that his biopsies they did during the scope and colonoscopy showed no graft vs host. So we continue to dodge that bullet. Counts continue to be good and I'm happy to report that not only is he scheduled to have his line taken out this Thursday but he will also be attending summer camp next week. He also turns 9 on the 29th. </div>
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Things are going great. Carter continues enjoying playing Minecraft, basketball, and UNO. We are really excited for him to be able to start swimming again soon. </div>
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Happy summer!</div>
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Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.com2tag:blogger.com,1999:blog-5454595603997812827.post-3318932065295280382015-05-17T06:37:00.001-07:002015-05-17T06:37:54.072-07:00Day +192<p dir="ltr">After getting a good report from our doctor, Carter was able to go to school and play kickball with his class. His Tcell count was high enough that she felt he would be ok around the class as long as no one was sick. I'm not really sure what the Tcells mean, but I do know they are indicative of a working immune system. His class won the kickball tournament! He was stoked. It was great for him to be normal again. A lot of the kids were confused about his appearance. He looks a lot different. But don't worry about his confidence. He is very full of himself and composed a song entitled "I Be Sexy", which listed all the ways he was sexy in his daily life. . </p>
<p dir="ltr">Carter is on 0.3 for his dose of cyclosporine. Tomorrow he goes down to 0.2. When he finishes that medicine he gets to begin the process of getting his broviac line out of his chest. Which will be great because he can go swimming! </p>
<p dir="ltr">He's going to go to camp this summer. It's a week long and he will be without us. I think he's going to have a great time and learn a lot from the other kids. They are having a talent show and he asked if he could learn a Michael Jackson dance for his talent. We are still working on that. Motherhood took a large amount of my rhythm and dance ability. </p>
<p dir="ltr">Overall, we are trying to rest, have fun, and enjoy our time together. You never know what tomorrow will hold. You've gotta love your family like there is no tomorrow! </p>
<p dir="ltr"><<u>3</u></p>
<div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQklwXwOnGqRDZNTrjC3ErBEDDEHLfPNMPe5rqgk6i64aamhVc9I5gpI7vMguxOU0UEiqXVEqgq6fxNUZaWANEkdfDgeHviIpa6gx-3OxuipwsQURMfGmZiMUsw-idjtrkgy3KDH5DOkY/s1600/20150515_130309.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQklwXwOnGqRDZNTrjC3ErBEDDEHLfPNMPe5rqgk6i64aamhVc9I5gpI7vMguxOU0UEiqXVEqgq6fxNUZaWANEkdfDgeHviIpa6gx-3OxuipwsQURMfGmZiMUsw-idjtrkgy3KDH5DOkY/s640/20150515_130309.jpg"> </a> </div><div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdCOiOAXU1vOEF9ubhikjpwGxN0c1vo2RgAsW0mIRnsd6LF9yB8eKyAzVHPB40CguIrUhsUOJ3ccvcV7ZYgaA-cBI1DtPZvR2Yk0w6-YMJlw4cYnY8sipLne1iHwzW4C81QOrDW9EP2vM/s1600/20150515_135802.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdCOiOAXU1vOEF9ubhikjpwGxN0c1vo2RgAsW0mIRnsd6LF9yB8eKyAzVHPB40CguIrUhsUOJ3ccvcV7ZYgaA-cBI1DtPZvR2Yk0w6-YMJlw4cYnY8sipLne1iHwzW4C81QOrDW9EP2vM/s640/20150515_135802.jpg"> </a> </div>Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.com0tag:blogger.com,1999:blog-5454595603997812827.post-3290024217525738372015-05-04T04:41:00.002-07:002015-05-04T04:41:58.355-07:00Day 179<div class="separator" style="clear: both; text-align: center;">
I'm always so disappointed with myself when I see how long it has been since Carter's last update. However, with all that went on this weekend as well as all that's planned for today, I think today is as good a day as any to give an update! </div>
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First, what we have going on today..</div>
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Today is Carter's visit for his day 180. He has been weaning off of his cyclosporine, the main, important, immunosuppressive medicine that he has been taking since his transplant. His least favorite because it tastes disgusting. It's also the reason he needs other meds for his blood pressure and heartburn, etc. So, we are down to 0.4 ml from 0.8 and we are all excited about him being done with so much medication. </div>
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Today he will get another bone marrow biopsy, an ECHO and an EKG. Those will basically check his heart function I believe. So far he's passed every test with flying colors and I hope to see the same today. </div>
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A milestone of day 180 is supposed to be that you are allowed to resume semi-normal activities like school, so we will see how his doctor feels. We still haven't done any immune system studies to see how his is functioning and though he seems to be healing well, all counts have been up and in healthy range for months, his docs are careful. Which I can appreciate. </div>
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We tried to go swimming this weekend with his broviac line covered in tape. Needless to say that didn't work. I don't know how much swimming he will be doing until he gets that lovely thing out. Hopefully it can go soon. </div>
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I think the next steps for his treatment are to see how he looks today, continue to wean him off his medicine, so far he has had NO adverse reactions or signs of graft vs. host that we can tell. However, he did get food poisoning about two weeks ago and was very concerned about why someone would want to poison him. </div>
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Other than that, he has been FULL SPEED AHEAD. Taking standardized tests, reading Hardy Boys Books, Watching <a href="https://www.youtube.com/user/stampylonghead">Stampy Long Head</a> videos on Youtube and building awesome Minecraft houses. He also loves playing basketball. (Side note: He had to "kill" one of his cats on Minecraft for some reason and I came in to find him building him a masterful grave complete with a tombstone, cross, and flowers. So his morals are developing as well!)</div>
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Now, on to this weekend. </div>
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We were blessed enough by the wonderful Mitchell family to be invited to experience this weekend with Carter's favorite UM player, Duke Johnson. </div>
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We got to meet and spend time with him and his family, watch the draft and be there to share his special moment, and Carter and I also watched our first fight while there. </div>
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It was an amazing weekend and I can't thank Cassandra and the rest of the family as well as Duke for letting us be a part of their family too. They really are some of the best people you could meet and we are so happy for Duke! </div>
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I'll post some pics of that side of the weekend when they become available, but for now, here are a few of us enjoying a lovely trail and Jensen Beach. Derrick is really ready to move to Florida after seeing that blue water! I need a little more convincing before I leave my mommy. I don't care how that sounds.</div>
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<3 Thanks everyone for the continued prayers, love and support. </div>
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I noticed on Google that those who searched for Carter also searched for Fanconi Anemia. So thank you to all who have helped to bring awareness to this condition and sought to provide help and care. </div>
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If you'd like to donate to help research a cure you can do so here:</div>
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<a href="http://fanconi.org/index.php/donate">http://fanconi.org/index.php/donate</a></div>
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Jungle man. </div>
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I adore him in that hat. </div>
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Side note. A recent article came out about our weekend here: </div>
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<a href="http://miamiherald.typepad.com/umiami/2015/04/remember-carter-hucks-hes-visiting-duke-johnson-today-for-nfl-draft-.html">http://miamiherald.typepad.com/umiami/2015/04/remember-carter-hucks-hes-visiting-duke-johnson-today-for-nfl-draft-.html</a></div>
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Guess I should have posted that earlier, so consider yourself a TRUE Carter fan if you're still reading, so you get the good stuff. </div>
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Anyways, they posted a pic of my baby looking rough from his pre-sexy-up-haircut days. I'd like you to refer to the above picture that was taken Saturday for what Carter TRULY looks like now. </div>
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We love you Florida!</div>
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Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.com3tag:blogger.com,1999:blog-5454595603997812827.post-79367876632684879582015-03-22T07:14:00.001-07:002015-03-22T07:18:42.240-07:00Carter Pics. Day +136<div class="separator" style="clear: both; text-align: center;">
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Hello all! Just wanted to post a few pics of Carter so everyone can see how he is doing. Thankfully everything seems to be trucking along with no complications. Thank God.</div>
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Hanging out with his pal. </div>
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Racing. Why with no shoes, I don't know. And I just noticed neither of them have matching socks on. Ha!</div>
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Boys on the block. Gotta love it. </div>
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Carter looks a lot different these days. He's about ten pounds heavier but still as active as ever. He loves playing basketball and just being with his friends. He's changed a lot through this whole ordeal, but I feel like it's been for the better. He's a lot more mature, he's also gained a lot of confidence and is learning about what's important in life. Friends, family, God, and enjoying your life!</div>
Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.com2tag:blogger.com,1999:blog-5454595603997812827.post-80624350561658664842015-03-11T18:09:00.001-07:002015-03-11T18:09:18.605-07:00Day +125<div class="separator" style="clear: both; text-align: center;">
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WOW! It's been forever since I've done a post. I made Carter stop long enough to take a recent pic for this update.Thankfully, not much has changed with Carter, except that he continues to thrive. I feel so outrageously blessed with how he's progressed. Not every family has been this lucky with transplant and we continue to try to enjoy each day he's blessed with good health. He looks a lot different these days. His hair is coming back, but he's also getting a lot of new hair in new places as you can see from the picture above.</div>
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Now for the technical stuff. His marrow is working great and all of his counts are at a normal level. It's amazing that he has platelets now so if I accidentally hit him in the head with a basketball pass, I don't have to worry about him getting hurt worse than superficially. Phew! The new marrow has engrafted and Carter was at 90(something)% donor last time we checked. All of his levels are going back to normal. He is taking an antibiotic every night through his line which you can see in the pic above. That little white thing under his shirt is his dressing that covers it. He gets an antibiotic as well as fluids throughout the night. He also takes meds three times a day. He does great with everything, but about once a month he will get a little upset about having to go to the doctor, be sick, etc. I always try to remind him that even though things are a little different for us these days, he is on the road to recovery and hopefully by summer will be living almost normally. </div>
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The next milestone for us is day +180. At that point they will start to wean him off of some of his meds to see how well his body will function and accept things by themselves. From there they will walk him back up to a normal immune system and eventually start giving him his immunizations again. He is allowed right now to be around friends and family as long as no one is sick. We've gone to waffle house, and he's gone on a few brief outings here and there. Taking care of a post BMT kid is a balance between keeping them safe and keeping them sane. No kid wants to feel like they are different than the others. </div>
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Carter has been spending a lot of time reading and playing basketball. Though he informed me that his favorite sport and his dream is still to play football. He also has been playing a lot of super smash brothers, hanging out with friends and family, and playing with his legos. Thanks to everyone who has reached out and continues to send love and prayers to our family as we walk through this crazy journey! We have met a few families at the hospital that are post BMT and it's been great to share experiences with them as well as offer them encouragement. For now we just try to live every day as normal as possible and enjoy the heck out of all the good reports we've been getting. </div>
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<br />Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.com1tag:blogger.com,1999:blog-5454595603997812827.post-50887851252815250132015-01-20T17:43:00.001-08:002015-01-20T17:43:54.051-08:00Day 75<p dir="ltr">Not a whole lot has changed as we keep moving forward. Carter has been doing his school at home and reading lots of books. We've also been going to parks at off times and visiting family. He's had some buddies over, which has made life feel more normal. We are going to the doctor two times a week now. Carter is off of the steroids so we are hoping he loses some of his squirrel cheeks and starts to look more like Carter. His appearance has changed so much over the past few months. He's got hair. .everywhere. His counts all look terrific! Much higher than they've been over the last year. We are monitoring a rash that the doctors think might be eczema. All things considered, he is doing great and in good spirits. Thanks to everyone for the continued love and support!</p>
<div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgKbxWwH52Z40M98T4JVeCf4xOcxJWmyM3T_-ABPUvVGKKgMQfiY4Topdh75b2TT8TkMQXsXWnIc-Y2K-c6QkIadtQW6Et4s3Ahdn7LdktU_Y5j2tHqSYWjUp7iFq_nPEgL0Vqj4jGFaCM/s1600/IMG_55763949086723.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgKbxWwH52Z40M98T4JVeCf4xOcxJWmyM3T_-ABPUvVGKKgMQfiY4Topdh75b2TT8TkMQXsXWnIc-Y2K-c6QkIadtQW6Et4s3Ahdn7LdktU_Y5j2tHqSYWjUp7iFq_nPEgL0Vqj4jGFaCM/s640/IMG_55763949086723.jpeg"> </a> </div>Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.com1tag:blogger.com,1999:blog-5454595603997812827.post-59657506156810277252015-01-09T14:40:00.000-08:002015-01-09T14:41:17.484-08:00Day 64<div style="text-align: center;">
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Things with Carter have been great. We had a great Christmas and New Years. He has been feeling pretty great and even playing outside some. We have played a lot of Super Smash Brothers on the Wii, Minecraft, Monopoly, watched a lot of movies, and eaten a lot of popcorn lately. We are mainly trying to hang out indoors and keep visitors to small amounts of people since the flu is supposed to be pretty bad this year. We've had two virus scares. The first one he was put on meds for and it seemed to resolve and then this past Friday we had to be admitted to the E.R. because he had some "explosive diarrhea" as he called it. They gave him a whole bunch of tests, viral stuff etc. to see what was going on and everything came back negative. He was showing a high amount of the EBV virus in his body though. After transplant, there is a possibility of old viruses the child has had with their old immune system reactivating and causing trouble for the new immune system which is still so new. That seems to be what's going on with Carter. After the weekend, he also had a new rash (which they think is eczema) and still having ED, so they wanted to do a PET scan to see what all was going on in his body. He hasn't had any graft vs. host issues yet so I think the doc was worried that could be what was causing his symptoms. After a biopsy of the rash and the PET scan yesterday, she just called and said it looks clear and she thinks he just is working through something viral. </div>
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He is now at 75-89% cellulousity in his marrow. 97% donor, which the doctor says is "remarkable" for this early after transplant. He went into transplant with 10% cellulousity and all of his counts low. Now his marrow is operating normally and the doctor said his counts all look normal. Everything is going along swimmingly and I'm trying to focus on the positive. Celebrating the victories and trying not to worry about possible complications. Carter is kicking butt. Reading Diary of a Wimpy Kid books and being his normal self. He gets a little burdened every now and then with all of the stuff going on, but always bounces back after we talk a little. Thanks to everyone for your love and support! </div>
<span id="goog_335036517"></span><br />Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.com2tag:blogger.com,1999:blog-5454595603997812827.post-59312601529572432062014-12-22T07:14:00.001-08:002014-12-22T07:58:06.469-08:00Respect the Stach<p dir="ltr">Carter is taking a medicine that is gross and makes him hairy. He has developed an adorable fuzzy nose and prepubescent stach. We got a good report from the doctor today. His platelet count was up to 152 which I think might actually be normal. His other two counts were good too which means his baby cord blood is doing his body good. They were monitoring for viruses after last visit they saw some possible action but today everything is still down in a safe range and not a threat. Still pretty nervous about him getting sick, but keeping him masked up and sanitized seems to be doing the trick. He's getting a little bored but I'm sure this week he will feel better! Merry Christmas to all! </p>
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Ok.SO SORRY for the delay in an update! This is Carter on the day we left the hospital!</div>
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Some of the amazing staff that cared for him.</div>
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Nick, an awesome nurse that cared for Carter.</div>
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Breaking out! This was the first time Carter was in this part of the hospital since he was admitted.</div>
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Finally home!</div>
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Ok. So to update everyone on Carter's progress. </div>
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Yesterday the doctor called and said the results of his bone marrow test show that his marrow is 100% donor. I'm not 100% sure what that means, but I'm fairly certain it means that his body has accepted his transplant and allowed the new marrow to "move in" as we say. The doctor said she was really happy about that!</div>
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Carter has been eating like a horse and has the cutest puffy cheeks due to his steroids. He's still on a lot of meds as they try to prevent his old immune system from trying to fight off the new stuff and keep him free from any infections. </div>
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We've had a few little virus scares here and there but nothing serious so far. We are trying to keep him mostly isolated with a few visitors here and there, as long as they are feeling well. He got a sweet set up in his room and a new desk so he's been doing a lot of Legos and doing school each afternoon with his teacher. </div>
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Thank you to so many of you who have sent cards, little gifts, and love and support. We have received so much! Every little bit has helped make Carter feel so happy. I really am at peace with where he is mentally as he seems very content and glad to be home with his family! </div>
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Oh, and we found out that he IS allowed to eat food from restaurants as long as they have an A rating, and so he has had wings like three times in the past two weeks. He is obsessed with hot wings. </div>
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His doctors are looking for day 100 as the next big milestone, but also said he won't be out of the woods for a few more months. </div>
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Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.com0tag:blogger.com,1999:blog-5454595603997812827.post-39494993717884521872014-12-04T07:50:00.001-08:002014-12-04T08:01:59.131-08:00Day 28<p dir="ltr">I'm late in posting about our release because I took some amazing photos the day we left the hospital but have yet to upload them with the chaos of the last few days. We left the hospital on Monday and brought Carter home. He was so happy to be back in his own room. He had crab and steak for dinner. The next day he started to have some pain when using the bathroom and also some blood, which they say can be from chemo or a virus. So we are waiting to hear back from that. On Monday he gets another biopsy of his bone marrow done to see how things are working and also he gets one of his lines removed. The doctor said his body is mostly donor cells.. she couldn't find the percentage but said it was high and she was happy. That shows that the transplant is taking and the donor cells. .the cells that work. .are doing their job! Giving him his meds at home freaks me out since there are so many. I also have to hook up his iv lines to various things. Everything is going ok though and Carter is eating like a madman. Just taking it one jam packed day at a time. </p>
<div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj83VR1f4E0g_tdDeXI8AThW3vxIAaSm7-oEtk_tRHWc9_WqQi2OfCpifmSwj9zEAfOO9BqKpOwRLc7Z7ENKZbMpo-e5MERrf3R_45CWS0xW01Kgy3l52iCB_H2USx6AcUASX75vqDoI4Q/s1600/IMG_20141204_104616.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj83VR1f4E0g_tdDeXI8AThW3vxIAaSm7-oEtk_tRHWc9_WqQi2OfCpifmSwj9zEAfOO9BqKpOwRLc7Z7ENKZbMpo-e5MERrf3R_45CWS0xW01Kgy3l52iCB_H2USx6AcUASX75vqDoI4Q/s640/IMG_20141204_104616.jpg"> </a> </div>Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.com1tag:blogger.com,1999:blog-5454595603997812827.post-24961001967126913902014-11-27T05:26:00.001-08:002014-11-27T05:26:14.522-08:00Day 21<p dir="ltr">Happy Thanksgiving to everyone! We are very much looking forward to seeing some of our family and friends today and eating some of Mr. Rob's she-crab soup. We are looking at possibly going home Monday. We are very thankful today for that and for all of the love and support we have gotten. We have gotten letters from people we didn't even know. Mail and gifts from so many people. Letters and a bracelet from a kid he didn't even know. It's been an amazing help in keeping our spirits high. Carter is feeling great! Eating baby bell cheeses and drinking lots of Gatorade. He's unhooked from his IV a lot during the day since he's primarily using it for fluids. Carter will have a pretty extensive home care plan! We will have to stay pretty isolated except for visitors and trips outside with a mask. I'll have to give him his meds three times a day and also care for his broviac lines by flushing them etc. Good thing Derrick and I have been doing some work in Carter's room, making it more fun. He's gotten really big into doing Legos. Thanks to everyone who gave him a kit. When we get home I plan on displaying them on shelves! He's also taken a liking to reading minecraft books and making things out of them. Right now he and his dad are building a Pagoda. Hope you all enjoy your family and be thankful today for what you've been blessed with! </p>
<div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjZ26WecFPf48pDR62tHKWa558dGjMcZi4nNdkEVBiKGoY4QY0vvgd5uQH697yG5FfpfOiZ26oukliIcKNkzHM8OazGoVuYbICkWKAaVSz-Ld_HncloRjtTlcoTDySw5h_TLFhyphenhyphenWBYkcBE/s1600/2014-11-27%25252008.02.04.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjZ26WecFPf48pDR62tHKWa558dGjMcZi4nNdkEVBiKGoY4QY0vvgd5uQH697yG5FfpfOiZ26oukliIcKNkzHM8OazGoVuYbICkWKAaVSz-Ld_HncloRjtTlcoTDySw5h_TLFhyphenhyphenWBYkcBE/s640/2014-11-27%25252008.02.04.jpg"> </a> </div>Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.com1tag:blogger.com,1999:blog-5454595603997812827.post-1091113906907873552014-11-23T10:25:00.001-08:002014-11-23T10:25:19.339-08:00Day 17<p dir="ltr">Today's ANC: 6,000! But, like the doctor says, they are baby cells. His immune system still has to be protected. She said she very rarely let's a patient go before day 30 unless they are doing over the top awesome. Carter is doing really well but still has to get back to eating and drinking. We've been exercising by walking the halls and watching movies. Right now he is watching Remember the Titans. </p>
<div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEin_gCLuiEtKHxwfMY0EpPUzGKngF8aZe5q7A-IZj1OjfckaGc5f1UvA9uVBO3kSf2A9UEenpTdQkiCbQHpDIuS1jZdshGZSbzCjIHTOMFPxZU9HXrIZB2tQaFr-QX6ZsRS3fnmu9mrjhk/s1600/2014-11-23%25252012.23.51.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEin_gCLuiEtKHxwfMY0EpPUzGKngF8aZe5q7A-IZj1OjfckaGc5f1UvA9uVBO3kSf2A9UEenpTdQkiCbQHpDIuS1jZdshGZSbzCjIHTOMFPxZU9HXrIZB2tQaFr-QX6ZsRS3fnmu9mrjhk/s640/2014-11-23%25252012.23.51.jpg"> </a> </div>Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.com0tag:blogger.com,1999:blog-5454595603997812827.post-79640818610607000732014-11-21T17:21:00.001-08:002014-11-21T17:21:38.616-08:00Day 15<p dir="ltr">Wow! Time is flying along. Carter's ANC is up to 2030. The doc says that shows engraftment. They sent off some blood today to see whose cells are in there. Carter or the donor cells. I think the goal is to have all donor. Should get those results soon. He's feeling well. Other than a few things here and there. Overall he is doing much better now that his mouth and throat sores are healing and now that he can go play in the playroom. We were told we might get to go home around or before day 30. Thank you to everyone who has sent gifts and cards and came by to visit. You have helped our stay be much much more positive! And we loooove you for it! </p>
<div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhNs5s2270-BawXoSYnbIWGXv7MFOnbvGgvN1sy8xkGWBKRG6nO32D6imqLMckrVpmP7Pd4v2ab10yTeM6_liY-blQ_c6oRzP7elAYqPLsNtJ95VNtdqb0Mnj1hIKx40wZnhRT0RLvUZwM/s1600/20141121_111245.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhNs5s2270-BawXoSYnbIWGXv7MFOnbvGgvN1sy8xkGWBKRG6nO32D6imqLMckrVpmP7Pd4v2ab10yTeM6_liY-blQ_c6oRzP7elAYqPLsNtJ95VNtdqb0Mnj1hIKx40wZnhRT0RLvUZwM/s640/20141121_111245.jpg"> </a> </div>Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.com0tag:blogger.com,1999:blog-5454595603997812827.post-26817535796234695282014-11-17T17:02:00.001-08:002014-11-17T17:02:02.100-08:00Day 11<p dir="ltr">Today was a great day. Carter's ANC is up to 200. His immune system is growing! Once he gets to 500 he gets to go to the playroom and once he gets to around 2,000 we get to go home! He also had a few things to drink today and ate a few nibbles of food. His throat is starting to feel better. We got some awesome packages in the mail today. Some sweet cards, a Sebastian stuffed animal (immediately was snuggled), tee shirts, activity books and more fabulous Hurricanes stuff. Thanks to everyone who sent us something and to everyone who continues to visit and pray for Carter. His doctor said she was "thrilled" with his progress. </p>
<div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOtq0yHOJ-cA9Hq02Gby3LVAhfR6vMq4ba8OHMwR21sojQuV_wskzOrHHiRgN5b0CfquroK9LzpzCyWgwDuWOVdxOV_77WPGa5NmLPC3FgBDYaNhZs1qf5arQvuKqCZp0dug3y0gacq4w/s1600/2014-11-17%25252019.56.32.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOtq0yHOJ-cA9Hq02Gby3LVAhfR6vMq4ba8OHMwR21sojQuV_wskzOrHHiRgN5b0CfquroK9LzpzCyWgwDuWOVdxOV_77WPGa5NmLPC3FgBDYaNhZs1qf5arQvuKqCZp0dug3y0gacq4w/s640/2014-11-17%25252019.56.32.jpg"> </a> </div><div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFaYJj4pj70EOb3Ud3gdKrjvDVeO8jRi07aXdNWOePyq4C-q4QZ0xqyE6AHMLlIqoNY5tTl7_eP-LIJioDlTqU_4fshefcSy-jvUZD_t2DmBDucsEtIj-FK5oNSo_uBfjOcFYdqiPmSdU/s1600/20141117_174940.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFaYJj4pj70EOb3Ud3gdKrjvDVeO8jRi07aXdNWOePyq4C-q4QZ0xqyE6AHMLlIqoNY5tTl7_eP-LIJioDlTqU_4fshefcSy-jvUZD_t2DmBDucsEtIj-FK5oNSo_uBfjOcFYdqiPmSdU/s640/20141117_174940.jpg"> </a> </div>Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.com0tag:blogger.com,1999:blog-5454595603997812827.post-7054541531480120652014-11-15T10:29:00.001-08:002014-11-15T10:29:16.821-08:00Day 9<p dir="ltr">So it's day 9! I left this morning at 5 to go run a 1/2 marathon. I wanted to do it to show Carter that you can push past limits and through pain. With a little willpower and fight you can do anything. I'm going to give him my medal I got for finishing. .when he wakes up. It's 1:30 P.M. He is really feeling crappy. His hair started coming out in little patches. I wish it wouldn't do that. I wish it would just fall out at once. He says he's OK with it. But I can tell it's all beginning to wear on him a little. Not eating and drinking. Not leaving the hospital. Hoping to get him up and go for a walk around the halls or something to brighten his spirits up. We were told the mouth sores won't begin to heal until his white blood cell counts go up. So. Until then we are hanging in there! </p>
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Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.com0tag:blogger.com,1999:blog-5454595603997812827.post-31659436539138418892014-11-12T12:52:00.001-08:002014-11-12T12:52:36.960-08:00Day 6<p dir="ltr">We went through a few good days with no symptoms. Then he started getting some of the mouth sores and a sore throat we were expecting. He's dealing ok, but I can tell it really hurts him. He hasn't been eating or drinking, which I don't like. But he's getting what he needs through his IV. He's done three days of school so far! He wanted to do it even though he felt yucky. So now we are just waiting for his mouth to feel better. Not much else to report. Everything is looking good and according to schedule. </p>
Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.com0tag:blogger.com,1999:blog-5454595603997812827.post-81513035611196865112014-11-08T08:58:00.001-08:002014-11-08T08:58:49.080-08:00Day 2<p dir="ltr">Carter is doing well. Last night his friend came to visit and his dad brought their projector. It fit perfectly on our wall and we watched Teenaged Mutant Ninja Turtles. Carter had SO much fun. He was dancing and being silly. It was like we weren't even in the hospital. He's been cruising these past two days. Nights are a little rough. We are so blessed by our friends and family. Nothing makes Carter and I happier than the visits from our loved ones! He's also been enjoying flying his air hog and drone toys around the room. I'm pretty sure they are outside toys but hearing him crack up watching the helicopter crash around his hospital room is music to my ears. I would like to take a minute to say that I love Lindy Sparby and the University of Miami. It's not just fandom anymore. I love them because they continue to pour out love and support on my teeny love! Also all the Miami fans and just genuine nice people who have commented and sent prayers! We were told we probably won't see any sign of engraftment until day 20+. That will be awesome to see Carter's body rebuilding! This morning was so beautiful as I left the house and it made me remember friends and Carter playing YMCA sports on Saturday mornings. Little blessings. Can't wait to get back to that! </p>
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Thank you so much to everyone who helped to make today great for Carter. We had cake, balloons, friends, silly string, blow pops. It was a great day. Carter looked a little nervous before we started. They gave him his new blood cells and THANKFULLY he did not throw up, which is a predicted side effect. He got to silly string us and zeroed in on his beloved father, of course. The team at Miami sent Carter an awesome happy birthday video and I can't say thank you enough. We watched that and his Raising Canes video before he got started. So today is day 0. He was given the cord blood cells from whom I deemed the "baby yankee" (we were told our donor was probably from the NE U.S.A.) And now we wait. He's not really hungry but he is eating a little here and there. Hopefully everything will continue to go as planned and we will begin the engraftment/healing process leaving Carter,</div>
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RENEWED!</div>
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Happy Birthday Carter Hucks, from the U </div>
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<a href="https://www.youtube.com/watch?v=hgXwXSDF1R4&index=1&list=FL82d6oPu57mw4veEGPrXVSg">https://www.youtube.com/watch?v=hgXwXSDF1R4&index=1&list=FL82d6oPu57mw4veEGPrXVSg</a></div>
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Carter Renewed</div>
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<a href="https://www.youtube.com/watch?v=2tZWv_YjCM8&index=2&list=FL82d6oPu57mw4veEGPrXVSg">https://www.youtube.com/watch?v=2tZWv_YjCM8&index=2&list=FL82d6oPu57mw4veEGPrXVSg</a></div>
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Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.com7tag:blogger.com,1999:blog-5454595603997812827.post-76475313198516325452014-11-05T06:39:00.001-08:002014-11-05T06:39:34.795-08:00Day -2<p dir="ltr">It was the best of times. It was the worst of times. Carter is up and down with how he feels. One minute he's up throwing his football, the next he's feeling sick to his stomach. Thank God today is his last day of chemo. It will still be in there making him sick but at least no more is going in. He asked about it last night. Why are they giving me medicine that makes me sick? So hard for a kid to understand you have to go through the pain to get the gain. But I heard him telling himself, "You got this Carter" softly under his breath. And he does. We got some special mail from Miami yesterday and Derrick read him each one. He loved it. Thanks to everyone who's encouraged <u>our</u> family and my boy through this. Please keep it coming! </p>
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Well, Carter officially feels yucky. He's mostly dealing with fevers, chills, and poopies. Lots and lots of poopies. His skin is looking a little flushed and his cheeks are getting puffy. I told him he looks like he gained weight from working out ;) . He still looks handsome! Anywho. He's doing great, all things considered and in pretty good spirits. He has been sleeping a good bit this morning. If you're in the hospital you become nocturnal. He feels gross but still loves having company. Just make sure you aren't feeling sick at all if you want to visit! From what they say, we are still in the thick of it with more to come. At least we have 2.5 days of chemo down and only 2 more to go! He will still feel gross afterwards, but at least we know he's done with yucky chemo meds that are so harsh on his little body. Second birthday coming up this Thursday(The day he gets his transplant cells). Be sure to wish him a happy birthday if you can! Now we have to have cake two days per year. What a shame! </div>
Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.com8tag:blogger.com,1999:blog-5454595603997812827.post-35716062468376856682014-11-02T17:43:00.001-08:002014-11-03T06:25:22.192-08:00Day -4<div dir="ltr" style="text-align: center;">
Today was a good day. Carter tolerated his chemo pretty well. No puke. . So far! Just some nausea and fever. He was feeling a little better too. Thanks to all of our sweet visitors! We love you! </div>
Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.com1tag:blogger.com,1999:blog-5454595603997812827.post-38232029607644585932014-11-01T15:47:00.001-07:002014-11-03T06:27:59.571-08:00Day -6, -5<div dir="ltr" style="text-align: center;">
Yesterday's radiation went well. We finished early in the morning. That afternoon was a little rough mixed with great. He threw up from the radiation but later was feeling better. We had visitors and went to the play room. Carter got a phone call that cheered him up. We saw part of the Halloween parade and Carter put his football outfit on. We went to the play room later to see the super heroes repel down the side of the building. Then they came inside and Carter walked right up to Batman with a pool stick and challenged him to a game of pool. He's really liking playing pool. The heroes were so nice! That night he was a little sad. Feeling a little emotional about the gravity of the situation. It was a late night. This morning he felt better. We donned our Kelly tough shirts and watched Duke and the canes run up the score on NC while he did chemo. He had a pretty good day but did get sick and picked up a fever. He's sleeping now and was ok when he fell asleep! Thanks to everyone who has sent well wishes and expressed concern. Sorry if I haven't responded to you! It can be a little hard to take attention off Carter.</div>
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Jessie Bolessiehttp://www.blogger.com/profile/03453629608464783088noreply@blogger.com5tag:blogger.com,1999:blog-5454595603997812827.post-89540838044392000872014-10-30T16:44:00.001-07:002014-10-30T16:45:31.199-07:00Day -7<p dir="ltr">Today went great! The days are negative numbers until carter gets his transplant. That's day 0, then we count up. Surgery went great today and carter had a great day. He is wheeling his iv machine through the hallways aggressively and playing pool in the atrium. As well as lots of video games. He is eating well and not very sore from his surgery. In other news. .I went for a run today which was nice and derrick brought in an air mattress. Still trucking! Radiation tomorrow. </p>
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