Monday, October 20, 2014

Our Awesome Vacation, Summarized!



Wow! What a week. I can't even begin to describe how jam packed it was! I'll try though!

Friday we left our house and drove to Georgia for the Miami - Georgia Tech game. Our hotel had an awesome view of Atlanta.


That night we went to a pep rally. We didn't stay long as there were zillions of people there and we were hungry, but we stayed long enough to buy some Miami gear and long enough for two cheerleaders to come say hi to Carter. He is like some sort of a pretty girl magnet. (God help me)



The next morning we stopped at the Marietta Diner. It was delicious! Try the french toast.

Then we went to the aquarium. It was really nice and they had a few animals we've never seen before. Like a Beluga Whale, Whale shark, and other cute assorted sea creatures. We watched a dolphin show too that included some awesome show tunes.






I'll be honest. Being at the aquarium made me hungry. For fish. 

That night we got all bundled up and headed to the Miami/GT game. It was pretty nippy. Carter had on 2 shirts a hoody and a jersey. He was overly warm. 




Oh and he also had on an awesome hat made by his Aunt KK!

The game was pretty fun all things considered. Some really cool guy behind us wouldn't stop cursing. Carter looked under enthused. 

The next day we left for Florida. We were planning to stop and see a waterfall on the way down. Derrick had rented a Camaro and was having lots of fun weaving down the country roads when I realized I was feeling nauseous. Carter was too, so we took a quick break on a quiet and beautiful driveway. 


When the woman who lived at the house (not pictured) got home, she said someone had had the same problem last week and had to stop in her driveway too! We are flat-landers it turns out. 

When we got to the waterfall, Derrick decided we were going to take the challenge to hike to the top of it.











It was beautiful and I really enjoyed getting to share an experience like hiking with Carter and Derrick. This was both of their first ever hikes! I'd say they did pretty great. 

We stopped after our hike at Atlanta Highway Seafood. The shrimp were amazing!


We were headed to see my grandparents in Cape Coral. 










We had a wonderful time seeing family we had not seen in a while. It was especially great to share an experience with Carter that I had loved so much as a kid. Gotta love grandparents! We went to a German coffee shop and I enjoyed my extra large latte. Carter loved grandma's dogs!

After that, it was time for our Make A Wish Trip to begin! Miami, here we come!


This is one of the apartment complexes in Bay Harbor where they filmed the show Dexter. We had to make a pit stop. Unfortunately it's gated so we couldn't go up to the actual room. 




When we got to our hotel, we walked in and everyone said, "Hi Carter!" He looked around in confusion! Everyone wanted to talk to him and greet him. He wanted to meet his first Jamaican ever, since he has become enthralled with the movie Cool Runnings lately. He got to meet a sweet girl that worked at the hotel and was Jamaican. Everyone there was so sweet to him! 

We tried lots of delicious food while we were there! Miami has THE BEST food. 


Fritas.


Mufungo.


Pollo Tropical!



The next day we went to the University to get things started! Carter was greeted at the car by Lindy, Gabriel, and Sebastian. Lindy does marketing and other cool stuff for the football team and was a major part of putting our trip together! She was awesome. Gabriel helped film Carter for the Raising Canes video. 


When we walked in the door, Carter's favorite players were waiting to greet him. Duke Johnson, and Denzel Perryman. They gave him the grand tour!





Carter got to do a little bit of everything that day. He got to tour the facilities, sit in on meetings, get taped up. They made him his own locker in the locker room, gave him his own jersey with his name on the back and his own helmet with a blue visor just like Duke's! They went ALL out for him. He got to meet coach Golden and all the players. They were all so very sweet to him, making him feel like part of the team. 














The days Carter spent with the team leading up to the game were awesome. They let him run a few plays, and were always very encouraging. Playing catch with him, racing with him, bantering back and forth, lifting him up on their shoulders.

We had a little window of free time on Friday so we went down to Key West.





When we went to the game Saturday, Make A Wish sent a limo to pick us up,which Carter loved. When we got there, Carter met the players and walked the "Cane Walk" with them through the fans. We were able to be down on the field with them as they warmed up. Carter was a captain for the game and they let him go on the field for the coin toss. After that we spent some time on the sidelines with the players and Duke gave Carter a ball he scored a touchdown with. 
We were able to hang out in the MVP section with former players, all of whom were extremely nice to Carter and Derrick and I. We also met the president of the university and she treated Carter like her own little one! 

Everyone was so gracious and loving to our family! We can't believe how awesome this trip was for us as a family. This wish has brought Carter so much joy and confidence, and I know it is going to help make the next few months easier!

















Go Canes! Go Carter!

Saturday, October 18, 2014

Video Done by Miami About Carter's Visit


My baby is cute. That's all I've got to say about that. 
Well. Actually.
 Thanks to the University of Miami and 3 Penny Films for having us and filming us. This is definitely a great story to be told! 

Thursday, October 16, 2014

Holy #!$@


Fill in the blank above depending on your liking, but that was all that kept filling my thoughts just now. We had to sign consents for the upcoming transplant which included my favorite- honest, straight talk from our doc about all the risks involved with transplant. It's his only option at this point so we don't really have much choice.
Usually these talks would reduce me to a worried pile of tearful mess. But this time, I didn't even well up. I asked God to help me keep it together. To remain positive. To tell myself that no matter what, he will pull through. He's Carter. If any kid could do it, he could.
I can feel myself growing. Getting stronger in a way. I guess it's a matter of realizing you can't control the future or the outcome. I realized that two days ago as I watched a squishy image pumping on a computer screen. That little beating mass of flesh is what keeps my baby alive and my world together. I can't make it start or keep beating, but I'm thankful it was formed and continues to give me Carter.
The talk is scary. The odds are scary. The risks are scary. But it's what we've got to do. There are risks but also he could brush through like a pro.
He will feel bad. He will be tested. He will probably throw up. I will cry. I will run through Charleston and drink more coffee than I should. But we will get through! I will be positive. I will smile. I will not focus on the negative. At least not constantly.
If anyone would want to send things in to Carter during his transplant, that would be awesome! He loves:
Miami stuff
Sports stuff
Athletic wear
Athletic/cool socks
Board games
Legos
Science stuff
Building sets

We will also be in need of
Carnation instant breakfast- chocolate
Dried fruit
Cheeze it's
Chicken noodle soup
Various snacks but no fresh fruits or veggies.

I will try to post the address as soon as possible.
Thanks to everyone for all the love and support!

Wednesday, October 15, 2014

Results

So, the winter soldier and I headed back to musc today for our results. Heart looks good, kidney function looks good (thank God), lungs look good except for a few specks on the cat scan which could show infection. Even though he's not currently sick, doc wants to do a test to see what's in there. You don't want to start a BMT with an infection. Either way this will delay our admittance at least a week. This gives carter more time to squeeze toys out of me. Also I might be able to do our local zombie run and carter wants to check out a mac n cheese eating contest so. . Overall. Wet are good with the new development. Test tomorrow to see if it's infection in the lungs or not. Doc doesn't seem to be that worried. I'll try not to be either. :)

Also. We found out that we CAN have visitors of all ages as long as they are well on arrival. 

Tuesday, October 14, 2014

TESTS and more tests

At MUSC all day for tests and work ups for our admittance next week. Carter is kicking butt as usual. He is requesting a Captain America shield after we leave. After doing so great I might just get it for him! He's so much tougher than his mama! He's having his kidneys tested right now and watching toy story. Going to be a long day. — feeling positive.


It's crazy how fearful I've gotten about all this stuff. I guess as a mother it becomes so life and death for you if your baby is sick. But I realized something. All of us are given our babies on loan with no guarantee they will be with us tomorrow. At least the fear can be turned into motivation to live in the moment. Must be positive. It truly is a choice. My boy is so amazing and he's such a huge part of me. I'm blessed to have him whether it's for ten or ten x ten years. PLUS, MUSC rocks. And we are blessed to be receiving care from loving professionals in our prosperous country. 



I'll be positive if it kills me.



So today is a day of tests and then tomorrow is a consultation. Let's get it!

Monday, October 13, 2014

Cool Stuff From Our Make A Wish Trip!


Hey guys! As many of you know, we just returned from our vacation to Miami for Carter's make a wish! I will be putting together a more detailed account of our trip, but for now, here is some media for you to feast your eyes on. The cuteness is a bit overwhelming. 

https://miamihurricanes.exposure.co/ Go here for pics taken by the staff at Miami. If you click on the Make A Wish section you will see pics of our trip from Wed-Fri, practicing with the team and having fun.

If you click the one that says CANESFOOTBALL Vs. CINN You will see gameday pics including some of Carter doing the Canewalk, looking awesome, and running out of the smoke.

Here is a link to my photobucket account which has some pictures I took

Here is a link to a site with professional pics taken on game day by a Miami photographer

Here's a video of Carter running a play with the team.

Here is a link to Carter's "press conference" he gave before the game Saturday.

Here are a few links of articles written about our week.

Here is the link to Carter's NEWS appearance :)