Carter is taking a medicine that is gross and makes him hairy. He has developed an adorable fuzzy nose and prepubescent stach. We got a good report from the doctor today. His platelet count was up to 152 which I think might actually be normal. His other two counts were good too which means his baby cord blood is doing his body good. They were monitoring for viruses after last visit they saw some possible action but today everything is still down in a safe range and not a threat. Still pretty nervous about him getting sick, but keeping him masked up and sanitized seems to be doing the trick. He's getting a little bored but I'm sure this week he will feel better! Merry Christmas to all!
Wednesday, December 17, 2014
Thursday, December 4, 2014
I'm late in posting about our release because I took some amazing photos the day we left the hospital but have yet to upload them with the chaos of the last few days. We left the hospital on Monday and brought Carter home. He was so happy to be back in his own room. He had crab and steak for dinner. The next day he started to have some pain when using the bathroom and also some blood, which they say can be from chemo or a virus. So we are waiting to hear back from that. On Monday he gets another biopsy of his bone marrow done to see how things are working and also he gets one of his lines removed. The doctor said his body is mostly donor cells.. she couldn't find the percentage but said it was high and she was happy. That shows that the transplant is taking and the donor cells. .the cells that work. .are doing their job! Giving him his meds at home freaks me out since there are so many. I also have to hook up his iv lines to various things. Everything is going ok though and Carter is eating like a madman. Just taking it one jam packed day at a time.
Thursday, November 27, 2014
Happy Thanksgiving to everyone! We are very much looking forward to seeing some of our family and friends today and eating some of Mr. Rob's she-crab soup. We are looking at possibly going home Monday. We are very thankful today for that and for all of the love and support we have gotten. We have gotten letters from people we didn't even know. Mail and gifts from so many people. Letters and a bracelet from a kid he didn't even know. It's been an amazing help in keeping our spirits high. Carter is feeling great! Eating baby bell cheeses and drinking lots of Gatorade. He's unhooked from his IV a lot during the day since he's primarily using it for fluids. Carter will have a pretty extensive home care plan! We will have to stay pretty isolated except for visitors and trips outside with a mask. I'll have to give him his meds three times a day and also care for his broviac lines by flushing them etc. Good thing Derrick and I have been doing some work in Carter's room, making it more fun. He's gotten really big into doing Legos. Thanks to everyone who gave him a kit. When we get home I plan on displaying them on shelves! He's also taken a liking to reading minecraft books and making things out of them. Right now he and his dad are building a Pagoda. Hope you all enjoy your family and be thankful today for what you've been blessed with!
Sunday, November 23, 2014
Today's ANC: 6,000! But, like the doctor says, they are baby cells. His immune system still has to be protected. She said she very rarely let's a patient go before day 30 unless they are doing over the top awesome. Carter is doing really well but still has to get back to eating and drinking. We've been exercising by walking the halls and watching movies. Right now he is watching Remember the Titans.
Friday, November 21, 2014
Wow! Time is flying along. Carter's ANC is up to 2030. The doc says that shows engraftment. They sent off some blood today to see whose cells are in there. Carter or the donor cells. I think the goal is to have all donor. Should get those results soon. He's feeling well. Other than a few things here and there. Overall he is doing much better now that his mouth and throat sores are healing and now that he can go play in the playroom. We were told we might get to go home around or before day 30. Thank you to everyone who has sent gifts and cards and came by to visit. You have helped our stay be much much more positive! And we loooove you for it!
Monday, November 17, 2014
Today was a great day. Carter's ANC is up to 200. His immune system is growing! Once he gets to 500 he gets to go to the playroom and once he gets to around 2,000 we get to go home! He also had a few things to drink today and ate a few nibbles of food. His throat is starting to feel better. We got some awesome packages in the mail today. Some sweet cards, a Sebastian stuffed animal (immediately was snuggled), tee shirts, activity books and more fabulous Hurricanes stuff. Thanks to everyone who sent us something and to everyone who continues to visit and pray for Carter. His doctor said she was "thrilled" with his progress.
Saturday, November 15, 2014
So it's day 9! I left this morning at 5 to go run a 1/2 marathon. I wanted to do it to show Carter that you can push past limits and through pain. With a little willpower and fight you can do anything. I'm going to give him my medal I got for finishing. .when he wakes up. It's 1:30 P.M. He is really feeling crappy. His hair started coming out in little patches. I wish it wouldn't do that. I wish it would just fall out at once. He says he's OK with it. But I can tell it's all beginning to wear on him a little. Not eating and drinking. Not leaving the hospital. Hoping to get him up and go for a walk around the halls or something to brighten his spirits up. We were told the mouth sores won't begin to heal until his white blood cell counts go up. So. Until then we are hanging in there!
Wednesday, November 12, 2014
We went through a few good days with no symptoms. Then he started getting some of the mouth sores and a sore throat we were expecting. He's dealing ok, but I can tell it really hurts him. He hasn't been eating or drinking, which I don't like. But he's getting what he needs through his IV. He's done three days of school so far! He wanted to do it even though he felt yucky. So now we are just waiting for his mouth to feel better. Not much else to report. Everything is looking good and according to schedule.
Saturday, November 8, 2014
Carter is doing well. Last night his friend came to visit and his dad brought their projector. It fit perfectly on our wall and we watched Teenaged Mutant Ninja Turtles. Carter had SO much fun. He was dancing and being silly. It was like we weren't even in the hospital. He's been cruising these past two days. Nights are a little rough. We are so blessed by our friends and family. Nothing makes Carter and I happier than the visits from our loved ones! He's also been enjoying flying his air hog and drone toys around the room. I'm pretty sure they are outside toys but hearing him crack up watching the helicopter crash around his hospital room is music to my ears. I would like to take a minute to say that I love Lindy Sparby and the University of Miami. It's not just fandom anymore. I love them because they continue to pour out love and support on my teeny love! Also all the Miami fans and just genuine nice people who have commented and sent prayers! We were told we probably won't see any sign of engraftment until day 20+. That will be awesome to see Carter's body rebuilding! This morning was so beautiful as I left the house and it made me remember friends and Carter playing YMCA sports on Saturday mornings. Little blessings. Can't wait to get back to that!
Thursday, November 6, 2014
Wednesday, November 5, 2014
It was the best of times. It was the worst of times. Carter is up and down with how he feels. One minute he's up throwing his football, the next he's feeling sick to his stomach. Thank God today is his last day of chemo. It will still be in there making him sick but at least no more is going in. He asked about it last night. Why are they giving me medicine that makes me sick? So hard for a kid to understand you have to go through the pain to get the gain. But I heard him telling himself, "You got this Carter" softly under his breath. And he does. We got some special mail from Miami yesterday and Derrick read him each one. He loved it. Thanks to everyone who's encouraged our family and my boy through this. Please keep it coming!
Monday, November 3, 2014
Sunday, November 2, 2014
Saturday, November 1, 2014
Thursday, October 30, 2014
Today went great! The days are negative numbers until carter gets his transplant. That's day 0, then we count up. Surgery went great today and carter had a great day. He is wheeling his iv machine through the hallways aggressively and playing pool in the atrium. As well as lots of video games. He is eating well and not very sore from his surgery. In other news. .I went for a run today which was nice and derrick brought in an air mattress. Still trucking! Radiation tomorrow.
Wednesday, October 29, 2014
Monday, October 27, 2014
So far all I know of for Carter's calendar is that Wednesday he gets admitted. Thursday he gets his line/port thingy put in so he doesn't have to have an iv in his arm all day every day. Friday he gets radiation. Saturday- Thursday he gets chemo and then on Thursday, November 6th he gets his actual transplant. They call it his second birthday and Carter has already expressed his excitement at being spoiled for two days per year. They don't tell you who your donor was with a cord blood transplant, but they were able to figure out that it was from a boy who is now 10 and probably was born in the northeast U.S. Pretty neat. After the transplant and his second birthday (woop!) It's all about the healing. As soon as his counts improve and his new cells activate and start working, we are on the road to recovery! Yay!
Little bean was on Sports Center: http://espn.go.com/blog/acc/post/_/id/76238/canes-welcome-aboard-carter-hucks
Monday, October 20, 2014
The next morning we stopped at the Marietta Diner. It was delicious! Try the french toast.
Then we went to the aquarium. It was really nice and they had a few animals we've never seen before. Like a Beluga Whale, Whale shark, and other cute assorted sea creatures. We watched a dolphin show too that included some awesome show tunes.